Character Through Pain - Part 1
Wednesday, 09 February 2011
Long story short Ben has been having "mini" seizures for the past few weeks. We have seen this before and it genuinely typifies something positive - that Ben is very healthy. So healthy that he is growing beyond his current dose of anti-seizure medications hence the occasional tremor whenever he is startled or disturbed while he is asleep or fatigued. Given that our boy is now a pre-teen we knew it was time to visit the neurologist to match his dosage to his weight...preparation and expectation in harmony. What we didn't count on was my own personal clumsiness.
Sunday evening I trip over Ben's feeding tube yanking the entire device completely out of his stomach. What followed was a scene straight out of ER or House including lots of sweating, cursing, and a mad scramble for medical & cleaning supplies. I cannot describe the sound of Ben's voice nor have I have personally suffered the same injury but I can damn well guarantee that it it hurt like hell. The seizure that followed shortly thereafter was one of the worst our family (including Jessie) has ever witnessed. It finally ended when Joan had to administer Diastsat, something we really, really hated to do. Watching Ben "stoned" is almost as unpleasant as watching him in the throes of his convolsions.
Thankfully his neurology appointment was Monday and throughout the week the seizures reduced in frequency and intensity. But yours truly has been doing a terrific job of punishing myself for putting Ben through a difficult few days. I think you will forgive me for not being so timely with my NaBloPoMoing.